Services

Moving initiatives forward in healthcare often requires more than just collaboration—it requires genuine engagement and shared purpose. Allynd specializes in creating consensus across diverse groups by building understanding, alignment, and buy-in. Our process brings all parties together, ensuring projects not only begin with clear goals but also sustain momentum toward success.

Allynd provides end-to-end research planning, from shaping the initial research question to coordinating multi-stakeholder data collection initiatives. Our experience includes designing patient registries, developing data-sharing frameworks, and facilitating investigator-initiated research. We ensure that each research endeavor is poised to produce actionable insights and is aligned with the priorities of patients, researchers, and industry stakeholders alike.

Successful projects require not just consensus but genuine buy-in from all involved. Allynd specializes in building strong, trusted relationships across patient groups, clinicians, and industry leaders. We guide stakeholders through exercises in goal alignment, shared purpose, and clear communication to create a community of invested partners who are committed to advancing the project’s goals.

Allynd streamlines clinical research and data-sharing efforts by integrating patient-centered designs with research and industry needs. We enhance project efficiency and impact by implementing robust, compliant data-sharing solutions tailored to each project’s unique requirements. Our experience spans from optimizing multisite research protocols to establishing data-sharing agreements that respect privacy, regulatory, and ethical standards.

Led a national neuromuscular disease registry as the community navigated regulatory approvals and access issues of novel treatments, including a gene therapy. Worked closely with patient organizations, key opinion leaders in the clinical community, and pharmaceutical companies. 

Negotiated multimillion dollar collaborative sponsorship of research with a disease community and three competing pharmaceutical companies. 

Facilitated the creation of a global disease registry working with global KOLs and patient organizations. Navigated the complex engagement and regulatory issues associated with data integration from existing registries, a patient support program, and de novo registries. 

Led the development of data collection platform that allowed for multi-jurisdictional data integration from clinical research teams and patients/caregivers.